The foundation of The Irish Migraine Association 14 years ago marked a turning point in the life of Cork woman Gobnait Lucey. Having endured migraine headaches for decades, this 55-year-old mother of five recalls the sheer relief of finding a means through which she could connect with fellow sufferers.
“Only someone who has known the hell of migraine can even begin to relate to it,” she says. “Non-sufferers haven’t a clue.”
Gobnait traces the roots of her affliction back to when she was newly wed. “Although I’m not suggesting for a moment that the two events were related!” she jokes, going on to pay tribute to her husband and family for their ongoing support and understanding. Prescribed a well-known codeine-based painkiller by her GP, Gobnait gradually upped the dosage as her migraines grew more and more severe until she was taking at least a dozen painkillers a day.
“I knew it was a lot at the time,” she recalls. “But I had five small children to look after, as well as my mother who had Alzheimer’s. I just couldn’t afford to be sick.” With her husband working away from home during the week, Gobnait’s migraines usually only appeared at weekends.
‘My husband used to joke that he was the cause of my headaches,” she recalls.
“But really, it was the brief absence of tension at weekends that seemed to trigger them back then.”
Meanwhile, as she continued to pop painkillers “like sweets”, Gobnait was becoming almost as anxious about the cure as she was about the complaint.
“I knew I was overdoing it with the pills,” she confesses. “But it’s a vicious circle — if you’re not on top of the pain, it’s on top of you. So you just keep on upping the dose.” Eventually, “slowly and painfully” Gobnait managed to cut back on the dosage; but there were some very bad times indeed.
“During a particularly severe attack about 10 years ago, I actually thought about suicide,” she confides.
“There I was, with my head feeling like it was being battered from the inside with a jackhammer, and I found myself thinking: if I were dead now, the kids would be big enough to manage without me, and the pain would be gone forever. That’s how awful it was.”
Afterwards, the shock of having been laid so low spurred Gobnait to re-evaluate both her condition and her means of coping with it. “Before, I used to think of my migraine as an evil little monster that followed me everywhere,” she says. “But then I realised that you must learn to control it — otherwise it will control you. That’s where a support network like the Migraine Association of Ireland really comes into its own.”
Gobnait was subsequently prescribed a powerful and very expensive drug which she continues to use judiciously to this day. “Even though this particular drug is extremely effective, I try to keep it to a minimum because it leaves me feeling so weak and exhausted afterwards.”
While she has managed to significantly reduce her daily intake of painkillers, Gobnait still relies on them to keep her migraines under control. And, with between 12-15pc of the population currently sharing her affliction, she maintains there is a huge dependence on codeine-based painkillers out there. “Just go on the internet. It’s incredible the number of sites you’ll find on the subject, with testimonials from people taking literally dozens of painkillers a day.”
Gobnait believes that the stigma of being labelled as “drug dependant” is causing sufferers to remain silent, although she herself has no qualms about speaking out on the subject.
“People don’t choose to become dependant on painkillers,” she points out. “But sometimes, as their pain spirals, so does their intake. It’s a vicious circle — particularly vicious when it is entirely beyond their control.”
Having lived the greater part of her life coping with an affliction that has so largely defined it, Gobnait is still no closer to determining what triggers her attacks. “The usual suspects — wine, chocolate and cheese — I make sure to avoid. But it keeps on coming back. I suppose it’s just one of those things.”
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